Rett Syndrome Awareness Program

Dear Mr. Gupta, Thanks very much for your response and support offered for the cause. We really appreciate your gesture and understanding of the matter. I am pleased to inform that we had organized our 7th Rett Syndrome Awareness Program on 12th October, at Auditorium of GB Pant Hospital. Besides an array of doctors from GB Pant, Gangaram Hospital and AIIMS, we were privileged to have doctors from as far as Military Hospital Jabalpur to come specially for the program. We had Smt. Stuti Kackar, Secretary, Department of Disability, Ministry of Social Justice and Empowerment as our Chief Guest. In our panel discussion with the specialist we covered, Genetics, Neurology, Orthopedics, Gastroenterology, Sleep Medicines besides offering a comprehensive interaction for the Rehabilitation Specialist from GB Pant and Institute of Physical Handicapped. The one to one meeting of the parents with the specialist was an absolute success with most parents taking full advantage of presence of specialist from various fields at the same place. We had around 250 parents and care takers attend the program coming from all across the country. We even had participants from Nepal and Bangladesh joining for the program. Besides discussion on medical issues of the children, we also made an effort to provide some entertainment in the form of a magic show and parents interaction. The program concluded with distribution of Duffel bags, diapers, quick dry sheets and toys for our little angels. We also reimbursed the to and fro fares for outstation parents and local conveyance for the parents coming from NCR region. Lunch, tea and snacks were also served at the program. Needless to say, the entire program took a lot of our time and efforts to coordinate with the doctors, rehabilitation specialist and the parents. Substantial, expenses were also incurred to support the entire program and gifts provided to the participants. We are very pleased to know of our willingness to extend support for the cause. However, it would be our pleasure to meet you personally to discuss the way forward. We are also very keen and interested to have some experienced person as part of our foundation to guide us to make our efforts more effective in the welfare of the children associated with our foundation. Sir, our core executive group meets every second Saturday of the month at our small office that we have taken on rent at RK, Puram. This coming Saturday (8th Nov), being the second Saturday of the month we would be meeting and it would our delight if you could join us for this meeting. I shall also speak to you to discuss on the other possibilities of our association. Thanks and Kind Regards, Samir Sethi President Indian Rett Syndrome Foundation New Delhi Mobile-9810331197 more  

Dear Mr Samir, I just had a chance to have a look at your post. It is a very good program and would like to get associated with this. Please let me know when this seminar is to be held and what sort of facilities you need to hold this seminar. I am living in Gurgaon and could sponsor the same depending upon what is required for the arrangements etc. Kindly contact me on tel 9871664854 more  

Thanks Mr. Verma. Your compliments would add more value, if we could have your presence at our program, details of which I would post soon. Regards more  

Dear Sir, This is wonderful work that you are doing, god bless, you truly deserve kudos for the work you are doing, All the very best! Warm Regards, Mohit On Thursday, 17 July 2014 6:10 PM, Samir Sethi wrote: more